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A Lot Has Happened Over the Last Two Weeks

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I haven’t written in two weeks for two reasons:

1) I’ve been very busy with my studies, research and work, and I’ve had a lot of appointments. There aren’t enough hours in a day.

2) I tried to see if superstition could work to heal me. I followed a crazy thought that said: “If you don’t write about this and don’t think about this, and just pretend everything is fine, this will go away. For every day you shut up about your left boob, the mass will shrivel for lack of attention.”

Next time I get a crazy superstitious thought like that, I will ignore it. Of course it didn’t work! I am getting very tired of writing about my Granulomatous Mastitis afflicted left breast. There are other topics that fill my mind that I would rather write about: occupational justice, inclusion of those-with special needs in the workforce and in schools, the 99%, health policy, education policy, grassroots initiatives for a different growth paradigm in economics… You get the picture. I will continue to write about coping with this illness until I get rid of it, because I’m stubborn that way.

The last post I wrote on March 12 described the sudden bleeding of the drainage puncture site. I waited all day for a call from my contact nurse. He called the following day, after I called a second and third time. He had gotten the wrong number from the receptionist. My poor boob was still bleeding on March 13. That puncture wound just wouldn’t close. Seeing as it was somewhat urgent, he gave me an appointment for the morning of March 14. I’m glad things moved swiftly.

The good Boob Doc was back, and she patched me up. I did complain about what her colleague had said to me. They have different opinions about how to handle my case. She drained blood from the leaky site, which reduced pressure and left a little bowl-shaped dent. She also told me I could just let it bleed next time. The bleeding is relatively harmless and relieves pressure, which reduces pain. I am very grateful to this doctor, because she is the one who stopped the excruciating pain. She also sent me for ultrasound imaging and possible biopsy, but the waiting time was so long that day, that I got a time slot for the following week.

It is so important to feel that you can trust your doctor. I feel that she is doing everything she can to help me. When she called the breast radiology and imaging department, they told her that the next available time slot was over a month away. She pushed and told them that she is dealing with a very “special” case, and got them to agree to see me right away. This is why I refer to her as the good Boob Doc. I think she’s brilliant.

I ended up with three new appointments for March 18, 19 and 22. This is what I call thorough follow-up. More on that on my next post.

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About A.K.

I am: dreamer, mother, wife, daughter, sister, friend, writer, reader, musician, artist, teacher, translator. I am a citizen of the world. These nations are my home: Denmark, Ecuador, USA, Canada, France and Germany. I believe the purpose of life is to love, laugh and learn. I am over being upset for getting this very rare disease: Idiopathic Granulomatous Mastitis. Forgetting all the pain and havoc is tempting, but I will honor the lessons it brought and release my resentment. This blog is my way of coping and reaching out to others who may be going through similarly unfair and bewildering experiences.

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